Matthew’s EEG is scheduled for tomorrow. During the doctor’s appointment, we had discussed him being hospitalized for a 24-hour EEG. But when I got the email saying everything had been scheduled, it said, good news!! the neurologist said an ambulatory EEG would be fine. Then it went on to tell me where to be and when but with no further details.
A couple of days later, out of curiosity, I googled “ambulatory EEG in children”.
Then I gasped.
Frantically, I called the EEG department and had them explain exactly what was going to happen. So basically, they are going to start by supergluing electrodes all over his head. Then they will wrap his head in a helmet of gauze to secure it. There will be a ponytail of wires coming out the top of his head. They will attach a valuable computer to him via a belt or a backpack–he isn’t supposed to mess with it. THEN THEY SEND ME HOME WITH HIM LIKE THIS FOR 24 HOURS! Oh yeah, and we maybe should have him sleep with us so he doesn’t strangle himself in the wires. Good times.
I did ask in a half kidding, but mostly serious way if they didn’t think it would be a better idea just to do this all in a hospital. I mean, really. This is a child who can scream for hours just because there is a new pair of shoes in his room. They said, oh don’t worry, we do this all the time. Meaning they suit the kids up and send them on their way all the time. That’s the easy part, friend.
So to say I’ve been dreading this is a major understatement, but like most everything in life it is what it is. It’s like when I was pregnant. People would say stupid things like Aren’t you so scared about labor??? First of all–not helpful. Second of all–of course, but in the end, it’s a fact of life. The baby has to come out sometime. People are born every day, and I will suck it up (and beg for drugs). I can do anything for 24 hours.
I’ve kind of become resigned in the same way about this. Yes, I am dreading it. Yes, it will stink. Yes, it is a bit inconvenient that Matthew will be wired up on Thursday and Friday while I am trying to prepare for Isaac’s birthday party on Saturday. But worrying about it isn’t going to change it. And frankly, it will be completely worth it to find out if he is having seizure activity. It’s time to stop worrying about it.
Let’s just do this.